Hello 2019

Happy New Year all, did we all have a good festive period?  I always think it’s a rather odd time of year to be honest, all routine goes out of the window, people eat too much, drink too much and generally loose control.

For people with a mental illness who require routine to stay stable this can be really hard.  I have two children now which requires you keep some routine but in the past this time of year has been difficult for me, particularly new year, I would go as far as to say new years eve is the worst day of the year for me.

My OCD has always had a strong connection to endings, – if I have an intrusive thought when something is about to happen for the last time, maybe I’m about to click the ‘buy’ button online, leave a holiday cottage for the last time or the end/beginning of a new year then of course this thought is going to come true – go figure.  This has always been a big one for me and over the years I’ve become better at ignoring it but it’s hard!

The festive time can be amazing for some people but I know for others it can be incredibly hard, breaks in routine, long periods of time possibly on your own and lots of alcohol just to compound it all.  I hope it hasn’t been too rough for you all.

I’ve found my OCD creeping back in here and there over the last few weeks, changes in circumstances can bring new intrusive thoughts which can catch you off guard.  After you’ve had OCD for over 20 years – man that stat sucks – there’s not that many new things your brain can throw at you day to day but change your circumstances a bit, say have a baby and new situations/thoughts can arrive and you’re not always as equipped to deal with them.  Now I already have one child so this time around I’ve been a bit better but there’s still the odd thing that can catch you off guard.  I’m just trying to take one day at a time at the moment and not be too hard on myself.

So this all feels like I’m rambling but this blog has actually become a sort of therapy in itself for me – oddly I really didn’t see that coming when I started it – just by letting all the junk in my mind out it starts to make more sense and rationalise what is an anxious mess in my head.

I really hope it can be of some use to someone else too but whatever happens it is helping me!

Here’s to a good 2019 – if it hasn’t started off as well as you’d hoped like mine then don’t worry, you can start each day a fresh it doesn’t have to be a new year.

Stay Strong xxx

 

Never forget how far you’ve come!

It’s so easy to give yourself a hard time!  I do it constantly, I’m definitely my own worst critic.  This week I was in the supermarket, it was really busy and I could feel the anxiety sitting there in my chest.  The car park was packed with people everywhere and inside wasn’t any better.

On top of the anxiety I then started getting frustrated with myself that small, normal day to day activities like shopping are still difficult and stressful for me.  Everyone else can do it, why can’t I, gurrrrr!

When I got home I had to sit down and remind myself that actually a couple of years ago I wouldn’t even of made it into the car park let alone the supermarket and actually I have come such a long way.  Even being able to recognise the anxiety and OCD thoughts when they are happening is progress.

Recovery is a marathon not a sprint (unfortunately), there will be set backs and days when we find it harder than others.  Always try and keep this in mind, never forget how far you’ve come, OCD is a bully and it won’t give up so you mustn’t either.

So how do you deal with these low points when they occur? 

I guess you have to be realistic, it is naive to think you’re not going to have bad days along the way and having a plan of action in place is key.

Always be kind to yourself and don’t catastrophise events/situations.

For me this week the shopping was something I had to get done, as we all know we have to face our anxieties head on and not run away from them.  I used breathing mostly to get through my anxiety on this occasion.  Deep breaths in and out to keep myself calm and relaxed.  I also took my time, I wasn’t in a rush so I took the opportunity to take a step back and think about what it was that was causing me to be so anxious.

The process for me on this occasion was more about getting through the shopping trip rather then relieving the anxiety, as this didn’t pass until I was home later and all the thoughts had gone but even being able to function with the anxiety is essential for recovery.  Not being completely paralysed by the fear, thoughts and the physical reaction is also an achievement in itself and by writing this now I am only just realising that myself.

It’s so frustrating to have to be on a journey – man I hate that word – but like it or not I am on an OCD recovery journey and I hope some of the things I am learning along the way are helping you guy’s out too.

Stay Strong xxx

OCD – Transference

So I’m not completely sure whether transference is the best term to describe this type of OCD but it feels like the best word to use for now.  When I think about OCD transference I think about a belief that someone else’s issues/problems can be ‘transferred’ onto you by just hearing about them/coming in to contact with them.  I would say it’s very closely linked to magical thinking OCD where there doesn’t have to be any actual factual link, your mind has just associated the two things together and triggered the anxiety and from then on you’re just back peddling.

I get this a lot, I mean A LOT.  It’s almost like when I hear something new, say on the news or in the paper I have to self assess myself to see if I am capable of what I’ve read or if there’s any event in my past that I can link to what I’ve seen.  Sometimes there’s even a fear that I could do what I’ve heard in the future.  So yes, it pretty much covers all bases.

Something I have found really helpful with getting through this type of OCD (which pretty much still hits me daily) is liking and believing  in yourself you have to know yourself incapable of unthinkable acts.  It does get a bit trickier when it’s something out of your control like a fear of contamination or a health issue.  We can spend so much time worrying about things happening to us that we forget to live.  This is probably one of the saddest things about OCD, I know I have missed out on a lot over the years through fear.  It’s so frustrating for me to look back now and I really try hard not to let it get to me anymore.

Having an awareness of what is happening can help, I’ve had OCD for a long time but I probably had it for nearly 10 years before I really understood what it was that was happening to me.  Without the understanding the anxiety and fears are more real because you just ‘go with them’, your body is telling you to be scared so you are.  I am now so aware of my irrational reactions to things that sometimes I am combating them before they even hit me.  Obviously it would be amazing to get to a stage where I have no reaction to the news etc but I’m not sure if this will ever be possible for me.  There’s only so much you can change the way your mind works.

So one of the things about transference is that a lot of them time you know the associated thought is irrational, I’m going to use an example sorry.

Say you have found out a friend has cancer, when you are hearing about it you think of yourself and then you have a fear that you will also get cancer unless you neutralise the thought with a ritual of some sort. 

You have transferred someone else’s issue onto yourself.  It’s quite a basic example but you get the general gist.  What can also happen for people with Pure O is that you realise the thought is irrational and you have to try and work out why your brain has linked it and why it’s completely irrational, therefore giving the thought time and making it stronger and more distracting.

I’m sitting here writing this now and I don’t like the fact that I’ve used myself in the example.  As by writing it my OCD is telling me that it could make it more likely to happen, which I know is completely irrational but still, the thought is there and I’m so tempted to change my example but I’m not going to!

It’s tough, this sort of OCD because you can’t avoid it, you have to face it.  Try to live in the now as much as you can, don’t think about the past, at all.  Try not to think too much about the future because you can’t truly know what is going to happen and you have limited control over it.  If you can take a  positive action then do it but otherwise let it be.

  • Make the most of what you have, write a thankful list each day to help you realise all of the good things that you have and how lucky you are.
  • Seek out the positives in life and don’t let other people drag you down.
  • Always do your best to fight the thoughts, it will get easier over time.
  • Use every tool you have to stay on course through your recovery.
  • Eat well and exercise if you can
  • Don’t use alcohol to drown out the thoughts, this never works!

Stay Strong xxx

Pure O

So here we are with another OCD classification, there really are a whole world of subcategories aren’t there but you know when you’re suffering from OCD you probably have no idea about which subcategory you fall under and actually it’s not hugely important.  OCD can actually morph as well, when I was younger I had a lot of physical compulsions but nowadays 99% of my OCD would be classed as ‘Pure O’ I guess.

Pure O is when your OCD is internalised and you don’t really have any compulsions.  I would guess it’s more common in adults (though I have no evidence to support this) than children as I would say adults are generally more socially aware and better at hiding things, especially over time.

It’s also potentially a more dangerous form of the disorder as well, as if someone is particularly practised at hiding it, you can have no idea they have it and that person can suffer in silence for years and probably will, as if they’ve gone to such extreme levels to hide the thoughts then they’re probably ashamed of them.

So how can you tell if someone is suffering from ‘Pure O’?  I think my biggest tell was always mood swings, if a thought hit me that I couldn’t shake I would become quite withdrawn but if this wasn’t possible for a some reason then I would get very touchy as trying to rationalise a thought while trying to behave ‘normally’ is well, impossible to be honest.

People will not want to just open up and tell you what they’re thinking if it’s already causing a massive level of distress.  To get someone out of one of these episodes is tough.  Thoughts can take hold for days, weeks, months sometimes.  I’ve had to  come home from holidays in the past because I just can’t break out of the spiral and have been unable to go out or do anything,

OCD can be so terrifying and at times like these suicidal thoughts are not far from your mind, anything to stop the thoughts and associated anxiety!

So that was all a bit dark, sorry about that but I wanted to try and get across to anyone reading this who’s not suffering from OCD how scary it can be.  I’ve purposefully not put any of my personal thoughts in there so as not to trigger anything for anyone.

Different people find different ways of breaking out of ‘Pure O’, for me it has been a mixture of things.  Something that really helped me initially was talking to my CBT councillor.  Just by voicing the thoughts out loud and to see her completely non judgemental face sitting opposite me was amazing.  Thoughts I couldn’t even bear to think of, she just confirmed were completely normal – what a revelation!

I had a course of CBT therapy, I haven’t spoken much about CBT on this blog so far, personally for me it didn’t work.  Now I don’t want to bad mouth it in any way as I know it’s helped a huge amount of people but for me it just wasn’t the right method.

Some things that have helped me are:

  • Mindfulness, amazing!  Not the deep meditation sort but the bringing your mind back to the present moment sort.
  • Distraction – best thing ever
  • Structure, work and routine – has saved me on numerous occasions.
  • Socialising – interacting with others and not being stuck in your own thoughts, never underestimate how important this is.
  • The knowledge that the thought will eventually pass – even though sometimes it feels like it will never, ever go and actually the thought itself may not but your anxiety levels will.  I still get intrusive thoughts daily but everyone does – it is ‘normal’, never forget that, they’re not going to disappear you will just be able to dismiss them more easily.
  • Take good care of yourself and like yourself – I seem to say this one a lot but it’s so true and I seem to constantly need reminding of it myself!
  • Don’t drink the thoughts anyway, this is a short term fix which DOES NOT WORK!!!!!!
  • Talk to someone!  Remember you are not alone, someone else is probably having the same thought as you right this second and suffering in silence as well – how annoying is that – if only you knew and you could reach out to them, you could both laugh about it together, please talk to someone if you can.

 

Opening a conversion with someone who has OCD

If you think you know someone who may be suffering and you’re not sure how to start a conversion with them then offer them an indirect opportunity to talk, sometimes this can be easier for people, something like:

  • ‘I’ve been reading this amazing blog/book/article recently about OCD……….’
  • ‘Have you seen that celebrity_________ she/he has been talking about their OCD………’
  • ‘My ______ has recently told me they’ve been suffering from OCD, I’m so glad they opened up to me, now they’re getting help’

All these approaches are not direct and allow the person to open up a conversion more easily if they feel they want to talk.  Speaking from experience if someone says to me, ‘how are you?’ the automatic response is normally ‘I’m fine’, when sometimes that’s not the case.

Sending love to all today, I know it can be so tough

Stay Strong xxx

 

OCD – Letting Things Slip

Recently I seem to have let things get on top of me a bit, life has been so busy and I caught a few bugs over the winter period which have set me back a bit.

OCD recovery is a very delicate balance, it is really important not to take your eye off the ball but if you do it can start to slip before you really notice.

So the results of not feeling great and having less time have been that I’ve:

  • Eaten more junk food
  • Exercised less
  • Not worked on my mindfulness
  • Not given myself any time

All of this has resulted in my anxiety levels rising and my motivation to get out and do things falling.

So now I’ve noticed that this is happening (yes, I didn’t notice straight away) what can I do to get myself back on track?

  • Well the first thing I’am doing is writing this blog post, hopefully this will really help me pay attention and take action.
  • I am going to make a conscious effort not to reach for the snack food first and up my fruit, veg and general healthy food intake.
  • Get out at least once a day in the fresh air and try and do it mindfully.
  • I am going to try and carve out some time for myself, this one is hard when you have a family but I really do think it is important, after all if you’re not on top form how can you give the rest of your family 100%.

One really important thing to remember not to do (and which I am currently telling myself) is beat yourself up for slipping.  It happens to us all, recovery is not a straight line, the important thing is to notice and get yourself back on track asap.

So a bit of a post for me this week, hopefully it might help someone else too, perhaps I can add writing more inspirational blog posts to my targets too!

For now please bear with me you wonderful people and as always,

Stay Strong xxx

 

OCD – Procrastination

Now I’ve been dealing with my OCD demons for a fair few years now (over 20!) and although I feel I’ve gotten to grips with them to a certain extent, I know if I really look at my life that they still hold me back in many areas.

I have, I believe, reached a sort of plateau or ‘comfy place’ in my life and though this isn’t necessarily a bad thing – to have a steady job, relationship and social life – it does make it quite easy to just coast along.  Never having to step outside of my comfort zone means some of my OCD ‘fears’ can just be left and never confronted so to speak.  It also means that when something does come along where I do need to step out of my comfort zone – say I have to drive somewhere new/faraway –  normally my first reaction is to feel anxious and think of all the things that could go wrong, catastrophize.

Another side effect of my ‘comfy zone’ is that I never seem to get anything unessential done, things are only sorted when they have to be, rather then when they should be and therefore normally done in a rush and without much thought.  I believe this stems partly from my fear of making decisions.  Final decisions can have OCD thoughts associated with them and so cause me anxiety, therefore I avoid them where I can, naughty, naughty I know.

I feel I do get overwhelmed quickly and it doesn’t take much for me to start spiralling out of control, it definitely makes achieving things tricky.  It can also make me lazy, if I can pass a decision/activity on to someone else then normally I will, not good for OCD recovery I know and ultimately very frustrating for me.

So less of my moaning anyway, lets see if I can try and implement some solutions rather then posing endless problems.

My overall aims are to become more confident, to not let anxiety be the first thing to hit me when trying something new, to find solutions rather than problems and tackle my OCD head on and not avoid it.

  • I think I might start with a list, by writing down all the things I have been putting off/avoiding and then finding a way to tackle them one at a time it will feel less overwhelming and more manageable.
  • It would also help to see new experiences as exciting rather than scary, after all if we never do anything new how do we learn/progress?
  • I should have more confidence and believe myself worthy of new experiences.
  • I should try and get to the route cause of what is causing the anxiety and tackle it head on.
  • Remember that uncertainty is a good thing, would we want to be certain about everything?  There is a good exercise for dealing with uncertainty here.
  • Looking towards end goals and achievements will help to spur me on.
  • Accepting the worse case scenarios so I have nothing to fear.

Wow, so that’s quite a list.  Even the list itself feels a bit overwhelming to be honest but by just trying to take one step at a time hopefully I will start to achieve more of my goals.

Hopefully it can help you too.

Stay Strong xxx

 

OCD – Unexpected Events

So these are always fun.  You’ve been coping nicely with your OCD and you think you have everything under control and then bam, out of nowhere, something unexpected happens.

This happened to me this week, it snowed and we got loads of the stuff.  Normally this would be an event for celebration as it would mean, time off work, lots of fun to be had, perfect bliss but when you have a 1 year old who has only just learnt to walk and isn’t terribly keen on walking in 6 plus inches of snow and you can’t get your car off the drive then you are faced with a potentially stressful situation.

Most people who have suffered from some sort of mental health issue will know that getting out, even if it’s just for a walk is very important.  Being stuck in with only 4 walls as your friends can be unwise and so I’ve got to say the last 5 days have really tested me.

My normal routine (something that helps keep me grounded) was thrown out of the window.  My food shopping delivery was cancelled twice and so I’ve had to improvise there as well, working on limited supplies and having to adapt to new food brands and shops (as anyone with OCD will know familiar things bring calmness).

You know what though, I have survived and I have been able to adapt and so what I should draw from the last 5 days is that I am more adaptable now then I have ever been.  Even by writing that statement I am now looking back more positively on the last 5 days.  My perspective has been changed and so maybe this is the lesson I should pull from this experience.

Everything we go through teaches us something.   If we can look back on past events and try and find a positive lesson from the experience rather then a negative one, then maybe our memories will be more positive and we will look back happily instead of negatively.  I personally don’t have many good memories, most of them are tainted by OCD but perhaps I can now reflect back and see if I can put a positive slant on them?

Hopefully this can help you too, try and see the positive lesson from a bad OCD experience/memory.

Stay Strong xxx

OCD – Setting yourself up to fail

So once you’ve had OCD for a while you start to know what your ‘triggers’ are.  These ‘triggers’ can then start to control your behaviour.  For me, public toilets, driving at night and drinking are just three of the things I can think of that can cause me anxiety, even before an event occurs.  Most of this anxiety is triggered I guess, from past experiences.

If I go into a public toilet and there’s something on the seat, this will cause anxiety, intrusive thoughts etc but I’m going to take a punt and say not many people would like to sit on something unknown on a toilet seat?

Unfortunately for me that’s just where it begins, if there is a mark on the toilet paper dispenser or on the toilet roll itself – here’s betting most people don’t even look at the toilet roll – these can immediately trigger intrusive thoughts which can stay with me for at least the rest of the day.  I’ve already mentioned in a previous post that I always rip off the first piece of toilet roll wherever I am through fear of contamination.  If someone has placed the toilet roll on top of the sanitary bin or on the floor then that can be game over, I just turn around and walk back out.

I’ve already blogged about driving and some of the anxiety it causes me but at night I would say everything is multiplied and it’s much harder to dismiss, potholes, bumps in the road, noises from the car etc.  I would say every time I drive somewhere at night I get back home and there’s some sort of intrusive thought on my mind which I just can’t budge, so frustrating.

So if you start to get anxious before you even get to your ‘trigger’ situation you are completely setting yourself up to fail.  Your mind is already putting the thoughts into your head before you’ve even tried and so it creates a viscous cycle, which causes reluctance to do things and go places and so starts to create behavioural changes.

I’m not sure I will ever completely free myself of some of my OCD intrusive thoughts and thinking patterns, some of them are so ingrained in me after so many years.  I do still make myself face them day in and day out but who knows if I will ever completely win.  I guess the fact that I’m not letting them stop me doing things nowadays is a win in itself.  To live life without the thoughts at all is the battle.

So the point of this post was to try and find a way of avoiding the preemptive anxiety, somehow trying not to fail before you’ve even tried.  It’s such a tricky one because as soon as you start thinking about the situation you’ll probably start feeling anxious about it, another one of those ‘don’t think about the pink elephant in the room’ situations.

I would say the best way to try to combat the preemptive anxiety would be mindfulness.  If you are living in the moment then you shouldn’t be worrying about whats happening later.  If you know you have one of your triggers coming up, then do everything you can not to think ahead to it until you have to, this should help to stop the anxiety kicking in too early.

Every time you face one of your fears and succeed make a mental note of how amazing you are for beating the OCD and anxiety.  We never give ourselves enough credit when we do well and we always beat ourselves up when we are weak – human nature I guess. Make a list of every win and refer back to it every time you are struggling.

Stay Strong xxx

 

 

Reflection

So I’ve been writing this blog for 6 months now.  This for me is a massive achievement as I find it incredibly hard to concentrate on anything for a sustained period of time.  I get terribly excited about the idea of things but when I realise I’m going to have to apply myself and my mind fully, often I find myself unable to.  Focusing my mind on something, really concentrating, has always been difficult for me, my mind is quite often off, distracted, somewhere else.

There have been many reasons for this over the years, at times my OCD would apply fears/thoughts to actions.  I can remember practising my piano when I was younger and having to keep playing the same piece until I’d managed to get through the whole thing without a bad thought entering my head.  Sometimes I would have to play the piece four times because that’s how many members of my family there were at the time and if I didn’t then something bad would happen to one of them.

I like baking but if I am making a cake and I see a little mark in one of the eggs or perhaps a crumb gets into the mixture then the whole activity can become hugely stressful.  I don’t know how many cake mixes I’ve thrown away over the years through fear of them being contaminated.

The list goes on and on, I find it so hard to get my head into an activity and apply myself  without having to deal with some sort of OCD thought along the way.  I am guessing this is quite common for people with OCD?

OCD makes everything more difficult, cooking, relaxing, driving, decorating, seeing people, going places, work, relationships, pregnancy, events, absolutely everything I do is just a bit harder and over the years I’ve just had to get stronger and stronger to deal with it.

So how have I dealt with it?   

  1. I’ve talked to people
  2. I’ve had CBT therapy
  3. I’ve faced it head on
  4. I’ve learnt to control my thoughts better (most of the time)
  5. I distract myself
  6. I breath through the anxiety when it hits.
  7. I remove myself from stressful situations (when I can)
  8. I’ve read blogs
  9. I’ve started to practice mindfulness
  10. I’ve read books
  11. I’ve learnt what my triggers are
  12. I’ve learnt what relaxes me
  13. I’ve learnt to appreciate what I have
  14. I understand that the thoughts and anxiety will pass in time
  15. I’ve learnt to like myself more
  16. I’ve learnt to be kinder to myself
  17. I’ve educated myself

To be honest this list could probably go on and on.  It makes me realise how far I have come since I was 11, scared, not knowing what was happening to me, completely alone, feeling out of control and upset.  This was the reason I started this blog, no one should have to feel the way I did, ever!

Actually this blog has been very cathartic as well – which I didn’t see coming – so I would probably add ‘write’ to the list above.

I hope by sharing what I am learning and what I have learnt I will be of some help to others.  Life can be pretty tough at times and we all need to talk more to each other about whats going on inside our minds.

I feel like OCD in particular is a hard one for people to talk about as there’s normally an element of being ashamed of or embarrassed by the thoughts.  I guess if they were ‘normal’ thoughts there wouldn’t be an issue.

We must remember that everyone has intrusive thoughts, most people are just able to dismiss them straight away and so they never take hold.  As soon as you notice the thought and give it some time it makes the thought stronger and then if you keep thinking back to it, even if it’s only to think ‘why have I had that thought’ then it will get stronger and stronger and so the viscous cycle continues.

So to sum up the last six months have been a huge learning curve for me, thanks for everyone who’s followed so far, I really hope it’s been of some use.  Here’s to the next six.

Stay Strong xxx

 

Mindfulness in Practice – Part 1

So a couple of posts ago I said I was going to start looking a bit deeper into mindfulness.  It’s something I’ve only really dabbled in previously but I have found that it seems to work, so wanted to see what else I could find out.  I haven’t made huge progress so far – having a one year old doesn’t give you much spare time – however I did read something today which I managed to use quite successfully, so I thought I would, as promised, ‘pay it forward’ so to speak.

I am currently reading: Mindfulness: A practical guide to finding peace in a frantic world at the start of this book there is a section about how your posture, movement, facial expressions etc can affect your mood and the moods of others.  So for example if you smile – even if you don’t feel like smiling – you will feel happier, other people will see you and smile back.  The same goes for more depressed postures, if you are slouched with your head hanging low you are more likely to feel low and pass this on to others around you.  Obviously the book goes into it in much more detail but you get the general gist.

So today I drove to a roadshow – I think that’s the right term?  Basically an event where, lots of businesses come together to sell you things.  For me something like this is filled with anxieties: driving somewhere I’ve never been before, actually finding the place, parking, talking to lost of strangers, crowds (man I hate crowds), I could go on and on and to add to all the pressures, I had my one year old with me as well, nothing like putting yourself out there.

So I’ve been making big strides forward with my recovery and I know to get over a lot of mental issues you have to face them head on – that’s what I keep preaching on here right?  So when I tried to think of a reason not to go today, there really wasn’t an easily justifiable one.

Anyway I digress.

To be honest it mostly went well, I got lost once on the way but found it eventually and even found a double parking space, yippee!  When my little boy started to run around the presentation and wanted to get up on stage, I coped and everyone seemed to find it funny rather than irritating but eventually it all got a bit much for him and he really started to play up.  I can’t really blame him, it’s not the most exciting place for a one year old.

The challenge however really came when I got back to the car, he’d definitely had enough by this point and flatly refused to get back into his car seat.  I could feel the stress which I’d managed to keep in check up until this point starting to rise, could feel myself getting hotter, how was I going to get him back in his seat, everyone’s watching, argh!

Then I remembered what I had read in the mindfulness book, if I’m getting stressed my little boy will feel stressed, if I’m getting angry, my little boy will just get angrier too and so, I laughed, I looked up at the sky, took a long deep breath and started to laugh and do you know what happened?

My little boy started laughing too, all of the anger and tears of frustration which he had been displaying just seconds earlier just disappeared – well for long enough for me to get him strapped in anyway.  I’m not gonna lie I did have to sing nursery rhymes all the way home.

I know in that moment I was so happy I had read that chapter this morning.

Well that turned into a bit of an essay so I hope it all made sense.  Mindfulness really is incredible and by just being aware of how you are projecting yourself you can completely change a situation for the better, what a powerful tool to have.

Stay Strong xxx